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Diabetes Surveillance in Germany

Project lead: Dr. Christa Scheidt-Nave, Dr. Thomas Ziese

Contact: Dr. Rebecca Paprott

The Federal Ministry of Health (MoH) commissioned the Robert Koch Institute to develop a diabetes surveillance system for Germany. The four-year project aims to develop a periodic indicator-based health reporting for diabetes in Germany, which is based on primary data of RKI’s health surveys and secondary data from relevant stakeholders on federal and state level.

The team of the diabetes surveillance project will implement the following milestones in alignment with the scientific advisory board and topic specific experts:

  1. Development of a conceptual framework and definition of core indicators for surveillance of diabetes covering burden of disease, risk factors and quality of care
  2. Evaluation of the available data sources, identification of data gaps, and assessment of integration of secondary data for relevant indicators
  3. Alignment on format and content of a periodic diabetes health reporting considering international best-practice approaches
  4. Development of a prototype for a German diabetes report
  5. Evaluation of the diabetes surveillance system regarding continuous reporting and translation to other chronic diseases

Duration / status: July 2015 – December 2019

Data sources: RKI Health surveys (BGS98, DEGS, GEDA, KiGGS) as well as relevant secondary data sources on federal and state level

Project type: Research project

Commissioned / financed by: Funded by Federal Ministry of Health

Cooperation partners: Data owners of official statistics, disease registries, claims data, procedure data

Date: 12.11.2018

Publications

  • Reitzle L, Hansen S, Paprott R, Achtermann W, Baumert J, Bogaert P, Curt L, Diem P, Du Y, Eiser S, Fitzpatrick J, Heidemann C, Jousilahti P, Kulzer B, Lindström J, Neuhauser H, van Oyen H, Pelletier L, Schmidt C, Valabhji J, Weitgasser R, Ziese T, Zahn D, Scheidt-Nave C (2018): National public health system responses to diabetes and other important noncommunicable diseases: Background, goals, and results of an international workshop at the Robert Koch Institute.
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 61 (10): 1300–1306. Epub Sep 6. doi: 10.1007/s00103-018-2806-z. more

  • Gabrys L, Heidemann C, Schmidt C, Baumert J, Teti A, Du Y, Paprott R, Ziese T, Banzer W, Böhme M, Borrmann B, Busse R, Freitag M, Hagen B, Holl R, Icks A, Kaltheuner M, Koch K, Kümmel S, Kuhn J, Kuß O, Laux G, Schubert I, Szecsenyi J, Uebel T, Zahn S, Scheidt-Nave C (2018): Selecting and defining indicators for diabetes surveillance in Germany.
    J. Health Monitoring 3 (S3): 3-21. doi: 10.17886/RKI-GBE-2018-063. more

  • Paprott R, Heidemann C, Stühmann LM, Baumert J, Du Y, Hansen S, Zeisler ML, Lemcke J, Beyhl S, Kuhnert R, Schmidt C, Gabrys L, Teti A, Ziese T, Schmich P, Gellert P, Zahn D, Scheidt-Nave C (2018): First results from the study ‘Disease knowledge and information needs - Diabetes mellitus (2017)’.
    J. Health Monitoring 3 (S3): 22-60. doi: 10.17886/RKI-GBE-2018-064. more